- About FAITH
- Donate Now!
- Auction Items Wanted
- The Race Against Time
- Volunteer Resources
- F.A. on Facebook
- What is Friedreich's Ataxia? (on FARA's web site)
- Research Pipeline (on FARA's web site)
- What Is Friedreich’s Ataxia? (on MDA's web site)
- Friedreich's Ataxia on Medline (National Institutes of Health)
- Friedreich's Ataxia Parents Group
To read PDF files:
Our Next Event
Saturday, June 20, 2009
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To Buy Your Tickets Online: 
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About FAITH
Our lives have changed so much since Matt was diagnosed with Friedreich's Ataxia 5½ years ago. So much fear has turned into hope for the future. Dare we dream for a cure?
Since there are no effective treatments for FA, it was apparent that the best thing we could do was to help move research forward in finding an effective treatment or cure for this devastating disease.
The one thing in our lives that hasn't changed is our amazing community of friends and family. You have been a constant source of strength for us as we have fought this long battle against this disease.
Four years ago we organized our first fund raiser, FAITH - Friedreich's Ataxia in the Heart, referring to the toll this disease can take on the heart. But more importantly, it refers to the faith that we will succeed in our fight against FA.
FAITH has raised approximately $150,000 for FA research, with last year's event raising over $80,000. We are very proud of the fact that nearly every dollar raised goes straight to research. Expenses are kept low through a combination of extensive volunteerism and donated materials.
Every dollar raised by FAITH goes to the Friedreich's Ataxia Research Alliance, FARA, a national organization dedicated to finding a treatment and cure for FA.
Thanks to our committee of angels and supporters, as well as Outback Steakhouse, Saint Justin's Parish, Millennium Funk Party, and our emcee Jamie Matthews, we are able to provide a fabulous event benefiting a cause so close to all of our hearts.
So come and celebrate life, love, friendship and FAITH.
Aloha nui loa, (very much love)
Bart, Brenda, Katie and Matt Rupel
Donate Now!
Can't attend the event? You can donate online using secure payment with PayPal, or send us a check by mail to save us the transaction fees.
Click one of the buttons below...
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This information may be useful in requesting a matching grant from your employer:
Organization: Friedreich's Ataxia Research Alliance
F.A.R.A. Tax ID: 52 2122 720
Address: c/o Paul Konantz, 1921 Alice Dr, Penngrove, CA 94951
Paul's phone: (707) 795-3293
Auction Items Wanted!
Do you have products or provide services that you could donate to be auctioned? Click Here for details.
The Race Against Time:
a series of articles by Kristi Wright* (posted here courtesy of Santa Clara Weekly)
- Matt Rupel’s year in review (May 21, 2008)
- A true test of endurance (May 14, 2008)
- Matt’s Story, in His Own Words (February 7, 2007)
- Funding research to slow, stop and reverse a life-shortening disease (January 31, 2007)
- The importance of community when living with a life-shortening disease (January 24, 2007)
- Living with Your Sibling’s Life-shortening Disease (January 17, 2007)
- Living with Your Child’s Life-shortening Disease (January 10, 2007)
- Living With a Life-Shortening Disease (January 3, 2007)
Volunteer Resources
Forms and other resources for our volunteers: Volunteer Resources
On Facebook
A group was started on Facebook by someone with F.A.:
F.A. on Facebook